Enjoying Life with Chronic Pain
Join me as I navigate life with a disability, sharing honest stories, insights, and some really fun experiences I continue to have even with my disability.
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Frequently Asked Questions
Who the hell are you?
I am a man who has gone through a lot in my life, even before my disability. I have acquired self-awareness about many things which have allowed me to grow as a person substantially. I live a consensual non-monogamist lifestyle and enjoy intimate moments with other people. I have some pretty fun stories though!
What disability do you have?
I have arachnoiditis, an inflammation in the arachnoid membrane of my spine. This causes neuropathy, extreme pain, and the inability to use some muscles in my legs.
What caused your arachnoiditis?
I have always had degenerative disc disorder. This led to rupturing 2 discs in my lumbar spine when I was in my 20s that sent me to the ER. Once an OR was open, I received a microdiscectomy surgery to fix the ruptures. This worked well. 6 months later I was dragging a small table on the floor and ruptured 3 more discs in the process. After my second microdiscectomy the pain did not go away. Scar tissue has caused permanent damage which causes my spinal cords to clump together and get squeezed sometimes.
How do you find joy with constant pain?
There are many things one can do in order to feel like they are living. Some of the things that allow me to take some of the power back that I once lost are painting, camping, swimming, and a big one for me is kink.